I thought it was the dish that ran away with the spoons?

Well, in the nursery rhyme it is but for me it's POTS!

Click this for an explanation of POTS

And this for an explanation of SPOONS

Monday, 15 February 2010


I decided to get some heart rate and BP baselines to take to show my specialist when I get the appointment, because symptoms can vary so much from day to day and even hour to hour!

Take this for example. On Friday, I felt my most unsymptomatic EVER whilst standing. It felt NORMAL (and I hadn't realised how 'abnormal' it really feels, since that abnormal has become my normal and who knows how long it has been for).

Supine HR was 74
Standing 1 min = 86 (!!)
Standing 3 mins= 93
Standing 5 mins= 87

BP (sitting) was 98/67 in the morning and 114/76 in the evening.

This morning:

Supine HR was 63
Standing 1 min = 98
Standing 3 mins= 102
Standing 5 mins= 105
Standing 10mins= 126

BP was 82/64 supine, 95/69 sitting and 99/80 standing (after 1 minute).
After the ten minute stand, BP was 103/75.

I'm filling these all in in a little denim notebook that I can take with me. It's also interesting for ME to see how my symptoms vary.

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