I thought it was the dish that ran away with the spoons?

Well, in the nursery rhyme it is but for me it's POTS!

Click this for an explanation of POTS

And this for an explanation of SPOONS

Tuesday, 19 January 2010

Old blog

I was looking through my 'old blog' (that I kept 2007-2008) and I can't believe how often I mention

Feeling tired
Having no energy
Having a 'fluey virus type thing' (since I've found out about POTS I actually believe that these 'fluey virus type things' were simply times when the POTS was acting up worse than usual).

I don't think that was the start of the potsyness though. I've felt that way on and off since 2001 when I got a virus at uni. 2002 was when I started with my awful, horrendous, fuck-this-feels-like-labour-or-gastroenteritis (the latter of which I have experienced, the former thankfully not) pain. 2005 was when I started with Overactive Bladder. 2008 (approx) was when I noticed that I was thirsty all the time.

Look at this entry from said old blog:

Thursday, 14 August 2008

I've really had it.

I don't know WHAT is wrong with me but I know SOMETHING is!!!! And I want to know WHAT!!!!

I am exhausted. I look like shit. I feel drained. Every time I eat I feel queasy. I've lost weight. And lately I am THIRSTY ALL THE TIME !!!

I've already been tested for diabetes so WTF is this?!!!!

Oh and to top it all off I feel like I can't talk to anyone about it coz everytime I do I just feel like I am complaining and no one wants to be friends with someone who is always complaining.

I feel in need of blood tests and check-ups but they nearly always end up making me feel WORSE because they come back fine and the Dr looks at me patronisingly and says "You are healthy Laura." and I could WRING HIS NECK because just because they haven't yet FOUND what is wrong DOES NOT MEAN THAT NOTHING IS!!!!!! I *KNOW* that I SHOULD NOT be feeling this way!!!!!!!! It isn't 'me' and it isn't 'normal' !!!!!!!

Posted by Laura at 4:22 PM

This entry is the best way to sum up why I am hoping to FINALLY get a diagnosis. I don't WANT to have POTS or anything else for that matter, but if I do have it, I want the diagnosis. I want the treatment.

I get hooked up to the Halter Monitor tomorrow.

For the first time ever, I am hoping for a VERY 'potsy' day...


  1. Uncertainty is horrible. I don't wish POTs for you but sometimes having that diagnosis gives you so much relief. I remember the pre-diagnosis days ick. Don't get down though if the halter doesn't give you all the answers (although I hope it does). My halter came back normal even though I was passing out how I have no idea this is a ridiculous disorder. So here's sort of wishing you a diagnosis, Good Luck :)
    Whoa just read that back talk about ramble. Sorry.

  2. Funny, because it made perfect sense to me! Guess my brain is well equipped to understand ramble, since it does it so often itself! ;)

    Thanks for the good luck, I appreciate it- with such a ridiculous disorder suspected, I don't doubt I will need it! :)