The POTS ran away with my SPOONS!: Times like these I HATE brain fog.

Tuesday 15 June 2010

Times like these I HATE brain fog.

I've just realised... I've ordered the WRONG camera model!

I am SO frustrated and disappointed with myself!

The one I wanted is called Zs7 or Tz10. I remembered the '7' part and ended up ordering the Tz7 instead of the Tz10. I wanted the 10 specifically because it has more manual features so greater chance for creativity!!! I don't know if they will let me send it back to upgrade because I sent an email complaining that the camera was thrown over my 6ft 6 high gate requesting a replacement as it could have been damaged!! So now they might think I'm only doing that because it could have been damaged.

UGH!

I felt my heart sink when I realised the manual features I'd been so eagerly expecting weren't there. It's such a simple and easy mistake, anyone could make it, but it is still SO frustrating.

I suppose I'll just have to wait and see what Pixmania say about how it was delivered and if they're willing to send me a replacement I will ask then if I can send it back and upgrade. If not, then I'll probably just have to suck it up.

It takes AMAZING quality pictures though on auto mode. But I still wish for the extra features that I thought I was buying, and the next camera up would have those AND this awesome picture quality. I can't believe I've been so dumb. :(

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Dysautonomia Demystified.

Dysautonomia is a dysfunction of the autonomic nervous system. The ANS controls all the things you don't think about, like digestion, body temperature, blood pressure, heart rate.

The form I have is called "POTS".

"POTS" stands for "Postural Orthostatic Tachycardia Syndrome" which in simple terms is rapid heartbeat when standing.

That's only one of the symptoms. It's called a 'syndrome' because there are a vast array of other symptoms involved. Because it's a disorder of the ANS, anything which that controls can malfunction.

The symptoms I personally experience are:

*Fatigue: POTS can be draining and even debilitating as it takes 3 times as much energy just to stand up when you have it, therefore doing every day things is like running on the spot all the time- if an ordinary person did that, they'd be tired! That's the reality of living with POTS- you have no choice- you can't "stop running" because your body is keeping you 'running' (physiologically) all the time you are standing.
*I also have Inappropriate Sinus Tachycardia, which is a speedy heart rate all the time, even when I'm 'resting'. This means that for me, even sitting down is like jogging on the spot, or doing star-jumps. Basically, it's like my body never truly gets to rest. So I'm pretty much always tired!
(Check out The Spoon Theory for a good explanation of what it's like living with limited energy and having to forward plan everything to make sure you don't leave yourself short).
*Overactive Bladder (nervous system controls it, nerve signals aren't working right)
*Excess Thirst/Dehydration (if ever I find out why I have this, it'll be a miracle!)
*Migraines, or if not migraines, certainly frequent headaches.
*Neck and back pain
*Muscle aches/joint pain
*Brain fog- which makes a person forgetful and slow in their thinking, have difficulty accessing information stored in the brain, e.g. difficulty finding the right word, finishing sentences, remembering what to do and how- it's like having senile dementia; I joke about the dozy things I've done because of it because you have to laugh, otherwise you'd cry! Having an illness that disrupts your whole body is one thing, having it try to take your mind as well is another.
*Gastro-intestinal problems- bloating, reflux, feeling full quickly
*Disturbed sleep patterns (aka not sleeping well and also not feeling as if your sleep is restful even when you do).
*Involuntary muscle jerks when I'm trying to relax/sleep.
*Feeling as if I can't get enough oxygen, even though I'm breathing fine (very weird).
*Fidgety, always 'wired' feeling (makes it hard to truly relax)
*Feeling overstimulated easily
*Not being able to stand still for too long, due to excessive heart rate climbing higher and higher, which makes me feel physically 'stressed'.

There's possibly more but brain-fog makes one forgetful... I think that's enough to paint a picture anyways!

The POTS ran away with my SPOONS!

I thought it was the dish that ran away with the spoons?

Tuesday 15 June 2010

Times like these I HATE brain fog.

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Dysautonomia Demystified.